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NCT04284189Recruiting

Aftercare of Childhood Cancer Survivors in Switzerland

Official recordSimplified version

Summary

The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.

Inclusion criteria

• 5-year survivor of childhood cancer • Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH) • Age at diagnosis \<18 years • Age at study ≥16 years • At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition). • Written informed consent

Exclusion criteria

• Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma) • \<5 years after therapy of a relapse or palliative situation • Severe cognitive impairment, which makes it impossible to complete the questionnaire independently • Insufficient knowledge of the German language • Informed consent form not signed

Contacts

The trial team's contact details are shown on request.

See the official trial record
Status
Recruiting
Phase
—
Study type
Observational
Countries
Switzerland
Sponsor
Kantonsspital Aarau(Other)
Protocol no.
2018-02304
Conditions
Childhood Cancer, Survivorship, Transition
Interventions
Other

Treatments studied

  • Transition model

Collaborators

University Children's Hospital Basel, Luzerner Kantonsspital

Locations · 3

  • Aarau, SwitzerlandDivision of Oncology - Hematology, Department of Pediatrics, Kantonsspital AarauRecruiting at this site
  • Basel, SwitzerlandDivision of Oncology/ Hematology, University Children's Hospital BaselRecruiting at this site
  • Lucerne, SwitzerlandDivision of Oncology/ Hematology, Department of Pediatrics, Kantonsspital LucerneRecruiting at this site

In total, worldwide, all 3 sites listed in the registry are recruiting.

Site status per the ClinicalTrials.gov registry (last update posted: August 17, 2022).

This status may have changed and says nothing about your eligibility: before taking any step, check with your oncologist or the site.

Other identifiers

  • 2018 · NIH grant

See also

Other versions

These results are indicative and do not replace medical advice — discuss them with your doctor.