NCT04732273Recruiting
The Swiss Childhood Cancer Survivor Study - Follow-up (SCCSS-FollowUp)
Summary
The SCCSS-FollowUp is a national, multicenter cohort study designed to investigate late effects in childhood cancer survivors in a prospective and longitudinal way. The study is embedded in regular follow-up care and inclusion in the study takes place in a step-wise approach. The investigators collect data from clinical examinations, laboratory and functional tests, and questionnaires to learn more about late effects of childhood cancer treatments.
Inclusion criteria
This prospective cohort study is based on the Childhood Cancer Registry (ChCR), a national, population-based cancer registry that includes all children and adolescents in Switzerland who were diagnosed with cancer at age 0-20 years. It includes patients diagnosed with leukemia, lymphoma, central nervous system tumors, and malignant solid tumors or Langerhans cell histiocytosis. • Registered in the Childhood Cancer Registry (ChCR) or treated and followed-up in a Swiss pediatric oncology (SPOG) clinic, but not registered in the ChCR because of residency in neighboring countries • Diagnosed at age 0 - 20 years • Childhood cancer treatment completed • All age categories at time of inclusion in the study (children, adolescents, adults) • Written informed consent
Exclusion criteria
• Childhood cancer survivors in a palliative or relapsed situation where no follow-up examinations are foreseen.
Contacts
The trial team's contact details are shown on request.
See the official trial record- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Countries
- Switzerland
- Sponsor
- University of Bern(Other)
- Protocol no.
- 2019-00739
- Conditions
- Late Effect, Childhood Cancer
- Interventions
- Other
Treatments studied
- Physical examination, diagnostic tests, laboratory tests
- Personal history, questionnaire
Locations · 3
- Basel, SwitzerlandUniversity Childen's Hospital BaselRecruiting at this site
- Bern, SwitzerlandUniversity Children's Hospital BernRecruiting at this site
- Geneva, SwitzerlandUniversity Hospital GenevaRecruiting at this site
In total, worldwide, all 3 sites listed in the registry are recruiting.
Site status per the ClinicalTrials.gov registry (last update posted: September 23, 2025).
This status may have changed and says nothing about your eligibility: before taking any step, check with your oncologist or the site.
Other identifiers
- 2019 · NIH grant
See also
Other versions
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